Creating a Care Partnership

Creating a Care Partnership - Southeast Michigan Home Care Blog Posts | CareOne Senior Care - caregiving-for-parkinsonsCreating A Care Partnerships 

Parkinson's disease is a chronic, degenerative neurological disorder that affects 1 in 100 people over age 60. While the average age at onset is 60, people have been diagnosed as young as 18.

Sharing in your loved one's journey with Parkinson's disease (PD), means integrating the diagnosis together into your lives, adapting your routine and supporting him or her as the disease progresses -- essentially, establishing a care partnership.

This can sometimes be challenging; from learning about the disease and how best to help your loved one, to remembering to also care for yourself. There are steps you can take to help adjust to your new role as a care partner while maintaining a healthy and supportive relationship with your loved one.

  • How can I help manage my loved one's care
  • How will Parkinson's affect my relationship?
  • How can I care for myself?


Become an integral part of your loved one's experience with Parkinson's by offering to help share the responsibilities associated with the disease including doctor appointments, therapy sessions, medication administration, household duties or any activity that's more difficult to perform because of Parkinson's disease. People with Parkinson's will desire different levels of assistance and some wish to maintain as much independence as possible. You won't know if a person wants help unless you ask but then respect their response. Communication about these issues is key to understanding how best to help your loved one.

Ask your loved one if you can attend doctor's visits. You offer an outside view of how your loved one has been doing in the interim since the last visit. You may also recognize new symptoms or subtle changes that the person experiencing Parkinson's doesn't. For example, your loved one's mood or behaviors may have changed and he or she may be more withdrawn. These could be signs of depression, which is a clinical symptom of PD and is treatable with medication. A person with Parkinson's might otherwise dismiss this as a reaction to the diagnosis of PD or not even mention it to the doctor. You may also have noticed that your loved one's speech has become softer or more monotone. This may impact your ability to communicate and therefore your relationship. Speech therapists can prescribe exercises to improve voice control.


You and your loved one can decide together on management options offered and with two sets of ears tuning in, you can both be clear on the treatment plan.

As a caregiver, keeping track of all the details associated with medical care can be overwhelming. Here are some tips to help:

Stay organized with a calendar that you can take on doctor visits. Note doctor and therapy appointments, start and stop dates of medicines, and any side effects you notice.

Keep a list of all doctors' phone numbers and addresses in case of an emergency. Keep a separate and updated list of all prescription medications, their dosages and instructions and prescribing provider. Note allergies or medication intolerances as well.

Familiarize yourself with the terms of your loved one's medical insurance. Know what services, including prescription medication coverage and therapy session benefits, are included. Talk with your physician about the long-term needs of your loved one, and make sure his or her current medical plan will meet those needs. Engage the services of a social worker if you need help navigating these issues.

Know your rights in terms of disability coverage, family leave and elder rights.

If possible, consult a movement disorder specialist, a neurologist specially trained in Parkinson's disease and other movement disorders. Before appointments, prepare a list of your questions for the doctor.

Particularly in the early days after diagnosis, your list may include questions on:

  • long-term prognosis
  • symptoms you need to be aware of -- both motor and non-motor
  • how existing medical conditions may affect the health of your loved one
  • medicine protocol
  • non-medical treatments
  • clinical studies that need you or your loved one with Parkinson's


Parkinson's disease can place stress on a marriage or relationship. The fatigue and motor difficulties of the disease can cause changes in your partner's appearance and influence their contribution to the household. Cognitive and mood changes may make it hard to initiate and follow through on everyday tasks, which can be frustrating for both of you. As with any other important development that affects the lives of two people who are close, Parkinson's disease should be discussed openly and honestly. Do not consider your own concerns as a caregiver less important.

If you feel comfortable doing so, visit a counselor or therapist together or individually to work through the many changes and emotions you are experiencing and to learn how you can preserve and grow your relationship.



Caring for a person with a chronic illness full-time can be overwhelming. Put together a list of friends and family members whom you trust in case of an emergency. Don't forget your own interests and your life outside of Parkinson's disease. Schedule regular social activities and time for yourself. Go out with friends, enjoy a physical activity independently or take classes that interest you.

Consider seeking outside help. Many caregivers must continue to work part-time or full-time jobs while caring for loved ones. CareOne Senior Care provides in-home assistance to ensure safety, independence and continued quality of life. Our world class caregivers offer family caregivers a much-needed break. We offer companion care, helping to complete activities of daily life, transportation services, and much more.

Support groups offer the opportunity to share experiences and information with empathetic ears. There are groups for Parkinson's patients and their loved ones to attend together and separate groups. The Michigan Parkinson’s Foundation’s website offers an interactive map to help you find a support group in your area that meets your needs. Online forums can also be a source of support.

Remember that Parkinson's disease and its course are different for everyone. How you and your loved one navigate the disease is dependent on your individual relationship and personalities. Over time you will be able to come to an agreement on what constitutes the most effective, supportive and beneficial care partnership for you both.


ype the text here

5 Reasons to Use Home Care

Home Care Services in Northville MI: When an elderly relative becomes incapable of living alone without help from others, many families believe that they can offer all the care the person needs without outside help.

Is it Fibromyalgia?

Elder Care in Novi MI: Fibromyalgia is a disorder than can affect people of any age, including older adults. It is a very common condition that affects the bones and muscles.

What Are High-touch Surfaces?

Elder Care in Livonia MI: There’s a lot of talk about paying close attention to high-touch surfaces. But what are those and how can you deal with this in your senior’s home?

Meet Desiree

Home Care in Novi MI: Desiree is the proud Daughter of agency owners Carrie Akin and Tim Seipke. Desiree is an essential part of the CareOne Senior Care Office Team.

CareOne is Proactive in Practices

Home Care in Novi MI: CareOne Senior Care continues to operate under standard operating procedures to protect our clients throughout the entire year. We do not allow our staff who may have a common cold or flu to interact with our Seniors while sick.

Supporting Senior's Nutritional Health

Home Care in Novi MI: Many seniors face inadequate nutrition. The effects of being undernourished or malnourished can be dangerous, so it is important to recognize signs of nutritional issues in aging loved ones.

Home Remedies for Knee Pain

Home Care in Plymouth MI: Knee pain can occur in older adults for a variety of reasons. They may suffer a strain or sprain due to a fall or overexertion. Or, they could have knee pain from arthritis.

Coping with the Time Change

Home Care in Livonia MI: Recently, daylight savings time officially ended again as we turned our clocks back one hour on Sunday, November 3rd, making sunrise and sunset times an hour earlier.

How to Talk to a Senior About Caregiver Burnout

Caregiver in Plymouth MI: When you’re the primary family caregiver for an older adult, you may eventually suffer from caregiver burnout. It occurs when you feel overwhelmed, tired, and frustrated by the responsibilities of being a caregiver.

Advice for Seniors Just Diagnosed with Diabetes

Home Care Services in West Bloomfield MI: A new diagnosis of diabetes can be overwhelming. There’s so much to learn about the disease itself and how to proceed. Both the senior with the disease and their family caregivers have a big job ahead of them.

3 Preconditions to Act on Fast

Caregiver in Birmingham MI: Sometimes being told your older family member has a health condition can be seen as a positive instead of a negative. For example, learning they have a precondition gives them a chance to make changes.

Is Frailty a Part of Aging?

Home Care in Novi MI: Frailty is typically defined as getting slower, losing strength, weight loss, and not having as much strength as a person did when they were younger. Most people assume that getting frail is a natural part of aging.

July Is International Hepatitis Awareness Month

Preventative healthcare is important for seniors - many diseases are more likely to form as people age, and typically the most effective treatments are the ones that start early on in an illness' development. While many of these processes have been well known for years -

Living Alone with Dementia and Alzheimer’s

Many people with Alzheimer's continue to live successfully on their own during the early stage of the disease. Making simple adjustments, taking safety precautions and having the support of others can make things easier.

CareOne Senior Care Receives 2017 Best of Home Care-Provider of Choice Award

Southeast Michigan – CareOne Senior Care announced today that it has received the 2017 Best of Home Care – Provider of Choice Award from Home Care Pulse. The Provider of Choice Award is granted only to the top-ranking home care providers, based on client satisfaction scores gathered by Home Care Pulse, an independent satisfaction research firm for home care. CareOne Senior Care is now ranked among a select few

Hospital Discharge Planning: A Guide for Families and Caregivers

Being Discharged home after a hospitalization or a stay in a rehab center can be very confusing. At a time that a loved one may be adjusting to a new diagnosis or recovering from an injury, illness or surgery, transitioning home can be scary and overwhelming to both the patient and the family caregiver(s).

July is UV Safety Awareness Month

Summer has arrived and while the sun is shining bright it's a golden time to highlight July as UV Safety Awareness Month! We all love to take in those warm summer rays, but everyone must remember

Elderly Summer Precautions: Senior Care Tips

The heat of summer is here and it is an important time to review some vital safety tips for seniors. Elderly persons are more prone to the effects of heat and at greater risk for dehydration. According to the CDC, elderly......

It Pays to Plan Ahead: Long Term Care Insurance

It Pays to Plan Ahead: Long-Term Care Insurance They don’t call it the grey tide for nothing! Baby boomers are about to make up the largest senior population the world has ever seen, and if plans aren’t made now, getting old is going to be an extremely costly endeavor.

Understanding Dementia

Your memory often changes as you grow older. Some people may recognize changes in themselves before anyone else notices. Other times, friends and family will be the first to observe changes in memory, behavior or abilities. It may be hard to know the difference between age-related changes

Put a Spring in your Step!

Spring is an ideal time to get outside and enjoy the sunshine, smell the flowers and go for a walk!  Walking is also an opportunity for people of all ages to increase activity and improve health.   Fitting a simple 35-minute walk into...

May is National Stroke Awareness Month

May is National Stoke Awareness Month in the United States of America. Close to 800,000 strokes occur in the United States alone every year. Because of the high rate of strokes in this country, Stroke Awareness Month was designed to provide...

May is ALS Awareness Month

CareOne Senior Care, knows, first hand, the challenges of living with and caring for a loved one that has been diagnosed with ALS.  Our personal experience as a family in finding and providing exceptional care to our loving Mother, who...

Growing and Gardening Together

To grow a more meaningful and healthy connection with an elderly loved one, put on some rubber clogs and head out together to the garden! At any age, gardening is one of the best activities we can do outdoors.  It stimulates all of...